Affordable Health Care Act
Cheryl Fish Parcham is Deputy Director of Health Policy at Families USA, a national non-profit, non-partisan organization dedicated to the achievement of high-quality, affordable health care for all Americans. Here you will learn more about the new options for coverage and how to qualify for assistance.
Techniques to Cope w/Pain
Many individuals with NF have chronic pain that can interfere with their daily lives.While medications sometimes help, they often offer only partial relief and they can have significant side effects. In recent years, more and more people are turning to psychological techniques to help them deal with physical pain.
NF Needs Your Local Voice
Kim Bischoff, Executive Director of the NF Network and Katie Vanlandingham, from Van Scoyoc Associates, share their knowledge to help you advocate for funding for NF research to your local representatives.
Genetics of NF2
"The Genetics of NF2", presented by renowned UK Geneticist, Dr. Gareth Evans. Dr. Evans practices at St. Mary's Children's Hospital in Manchester, where he is also is the head of the NF2 Clinic. He has a wealth of experience with NF2 and currently see's most of the NF2 patients in the UK. He has published numerous articles on his research on the Genetics of NF2.
Research Advances in NF2
"Research Advances in NF2", presented by Ashok R. Asthagiri, M.D., Principal Investigator at the National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health. Dr. Asthagiri will speak about the NF2 natural history study and findings to date, as well as the NF2 program at the National Institute of Health (NIH).
NF1 & School Issues
"NF1 and School Issues", presented by James Tonsgard, MD, Director, University of Chicago Ambulatory Program for NF discusses the spectrum and diagnosis of learning disabilities and cognitive issues that can be associated with NF1.