From the Network

2017 NF Advocacy Program

2017 NF Advocacy Program

The NF Network Advocacy Program stomped the halls of congress February 5 through 7.

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In The News

Jeff Leibow shares personal mission

Jeff Leibow recently appeared on Good Morning Washington to raise awareness for neurofibromatosis.


Drug shrinks pediatric neural tumors

In an early-phase clinical trial, in most cases, children with neurofibromatosis type 1 and plexiform neurofibromas responded with tumor shrinkage.

Event Highlight

North Carolina company rallies around local man

Employees at Advanced Appliance Service, Inc in Winston-Salem, North Carolina, participated in one month of fundraising and awareness activities in support of Chris Denzern.

People Spotlight

Racing for a cure

Ashley Ihry decided to raise awareness for neurofibromatosis by dusting off her running shoes.


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